Tuesday, March 15, 2011

The top 20 List of things I am tired of hearing

I saw a short list on the spoonie site and thought I would personalize the list of things I am sick of hearing.  I know that people mean well.  I know that they are just trying to help.  But seriously, I am tired of hearing the following "helpful" tips:

1. Have you prayed for healing? (yes and the answer I got was "suck it up")
2. Have you googled your illness? (nope. never thought of it)
3. Have you talked to a specialist? (which one?  I have many)
4. Are you taking vitamin D? (yes. But maybe if I also apply self tanner I can convince myself I am not sick)
5. Are you sure it is Chiari? (yes, but thanks for doubting numerous neurologists and neurosurgeons)
6. Have you tried the diet for fibromyalgia? (which one - there are hundreds that claim to work)
7. Have you tried different medications? (no.  Still taking the exact same ones 9 years later - should I have tried others?????)
8. Have you went to church? (yep.  Held the snake too - didn't work)
9. Have you meditated? (yes.  Helps keep me from punching you but doesn't seem to stop the pain)
10. Have you tried yoga? (yes. Helps relax me a bit but doesn't end the pain.  Perhaps I am doing it wrong)
11. Maybe you are just stressed out. (You think?  If only I didn't have chronic pain I wouldn't be stressed out...)
12. Have you tried to get into any trial studies?  (I have chiari - they don't make mediation to shrink your brain)
13. You should try hypnosis. (You should walk away quickly before I say something I will regret)
14. Maybe if you lived in a warmer climate. (I will do that as soon as I win the lottery and can have Tim stop working)
15. Have you tried the magnetic bracelets yet?  I saw them on television and they really work. (Well if it is on television it must work!)
16. A glass of wine in the evenings would help you sleep. (So would a pint of vodka but my doctor has this thing about my kidneys and liver staying healthy...)
17. Maybe if you tried to do less. (Today my goal was to get breakfast - so I should starve???  Hmm.)
18. Maybe if you lost a few pounds you would feel better.  (First, thanks for calling me fat. Second, medications pack on the weight. Third, I would love to exercise but am in constant pain. Fourth, Seriously, thanks for calling me fat.)
19. I will pray for you.  (thanks because my praying about it clearly isn't as good as your praying about it)
20. Have you tried feng shui?  (yes, and the moving of my bed, bookcases, piano, sofa, and chairs sent my pain through the roof.)

I am sure that everyone has had stupid things said to them but I have to say, you would be amazed at some of the things I hear.  I am not joking when I say that the last time I was in the hospital a few weeks ago, a nurse asked me if perhaps a walk around the halls would make me feel better.  Seriously?  Walking?  If only I utilized that to get from place to place instead of the crawling I have been doing.  No wonder my hands, knees and elbows are so dry!

7 comments:

  1. I think God is getting back at you for not loving America enough.

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  2. Poultrygeist -
    I knew I should have registered to vote as an independent instead of as a democrat. *headdesk*

    ~Zip

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  3. Thank you for posting this. I was laughing out loud! My sister has chiari and I have often withheld saying things because I know the things I say are "wrong". She will get a kick out of this, I will be sure to share with her. Thank you. Feel free to visit my blog, too. We make goods and sell them, all in the name of chiari and awareness. The funds raised from selling products are donated directly to the Chiari Center Foundation. I hope that soon you are able to have more and more pain free days, and good lord NO ONE better call you fat :)

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  4. I've heard most of these myself, except the ones relating to chiari. (I have fibromyalgia, so chronic pain is my life.) Yeah the weight loss one I hear all the time and the "fibro diet"...that one makes me chuckle. Sometimes it's all I can do to not smack people upside the head, but I know it's ignorance - not malice so I try to be kind. It's just aggravating.

    Karen
    lilmuna.blogspot.com

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  5. Have you tried having lots more sex? I hear that can really take your mind off of things? (And with all the snow, Alejandro the Cabana Boy just isn't getting the volume of calls he is used to...)

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  6. Dear 10 Thumbs,

    My husband and I have tried that. It has not worked. Perhaps he is doing something wrong.

    Sincerely,
    Zip

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  7. Thank you for this post. I was recently diagnosed with Chiari and have had symptoms for a little over a year. I am going in for surgery this summer. I am having a rough day today but this post had me laughing out loud.

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